The Dangerous of Over-the-Counter Medications

Sitting here on a Thanksgiving weekend, I am roused to concern as I am watching Dr. Oz on television. Today’s episode is on over-the-counter medication, and the most common dangers of mixing your prescriptions with over-the-counter medications.

For example if you are on blood thinners like coumadin you should be aware than many supplements, as well as over-the-counter meds, are also blood thinners. Garlic, ginger, ginko biloba are all blood thinners. As are aspirin and some other OTC pain pills. Some people are on several of these things at the same time!

What to do? Be sure to tell your doctor if you are taking these supplements. Dr. Oz used the example of someone bleeding internally potentially bleeding out due to overly thinned blood and an abnormal reduction in platelets (our natural blood clotters).

Another danger is over-the-counter decongestants. These are very bad for diabetics and people with high blood pressure, as they raise your blood pressure and can be very dangerous for someone who is hypertensive.

Dr. Oz had several experts on the show and used various experts to support his warnings. But none of this means you shouldn’t take supplements or vitamins, or that you should not use OTC meds. It only means that you should do at least one of two thing: One, thoroughly research what you take before you take it. Which means look it up on the internet or take the time to read the accompanying literature. You can go to a health food store and ask them about what you are taking, or pick up a good book on the subject. Two, make a note of all your supplements and vitamins, and everything in your medicine cabinet (whether you are currently using them or not), and take it with you to your next doctors visit.
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Happy Thanksgiving (watch your stress levels, ok?)

I am testing some marketing items…and the only way is to see it in a blog. So feel free to ignore what follows, but if you like, go check it out. They have really cool personalized Christmas ornaments.

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Published in:  on November 27, 2009 at 2:31 am Leave a Comment

Did You Know? 4.0

Very interesting video from “The Economist” of all places. It is a short, less than 5 minute video with little factoids about the future of the internet. It’s mind boggling (and there is nothing for sale) just watch

cool huh?

p.s. if you have another 2 minutes, take a look at www.easycaregiving.com and sign up for the newsletter. thanks, Donahue

Published in:  on November 21, 2009 at 1:34 pm Leave a Comment
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Using Adult Day Care to Prevent Burnout

If you are caregiver you may be struggling with exhaustion, frustration, and depression. You may be feeling that you have little support from friends and family and feeling that people do not understand the difficulty of what you do. Let’s face it; most people would not unless they walked in your shoes for a week. If you are a typical caregiver you are alone and it’s not easy. Given that, you need every break you can get. Fortunately, Adult Day Care Centers can be one of the best weapons in your arsenal. There are very few opportunities for you to get a break, so you should never pass up a chance to take one.

There are two general types. One is based on a medical model and the other on a social model. The medical model provides comprehensive medical, therapeutic, and rehabilitation day treatment. The social model offers supervised activities, peer support, companionship, and recreation. Both models assist older adults and those with chronic conditions to remain as independent as possible, for as long as possible.

Adult day care is a planned program of activities designed to promote well-being though social and health related services. Almost exclusively adult day cares are only open during the week, typically between 8am and 3 or 4pm, and they provide snacks in addition to a midday meal.

Adult day care offers a win/win situation for everyone in the family-not only for the member who attends the program, but also for the family member who has primary responsibility as caregiver. Adult day care provides a much-needed respite for the caregiver, affording a break from the physical demands and stress of providing “round-the-clock care.”

For the participant, adult day care’s benefits can be extensive:

* A safe, secure environment in which to spend the day

* Enjoyable and educational activities

* Improvement in mental and physical health

* Enhanced or maintained level of independence

* Socialization and peer support

* Nutritious meals and snacks

For the caregiver, adult day care’s benefits are equally important:

* Time for routine chores like shopping and banking

* Make time for ones own medical and dental needs

* Time for personal rest and recreations: exercise or naps

* Opportunity for household tasks and cleaning

A well-run adult day care center’s goals will focus on enriching the participants’ lives, building upon their skills, knowledge, and unique abilities and strengths. Below are some of the activities that may be available:

* Arts and crafts

* Musical entertainment and sing-a-longs

* Mental stimulation games such as BINGO

* Stretching or other gentle exercise

* Discussion groups (books, films, current events)

* Holiday and birthday celebrations

* Local Outings

Besides recreational activities, some adult day care centers provide transportation to and from the center, social services including counseling and support groups for caregivers, and health support services such as blood pressure monitoring and vision screening.

Finding the right one for you

The National Adult Day Services Association (NADSA) recommends you start by asking yourself what specific services both elder adult and caregiver most need. For the day care participant, are social activities primary? Assistance with walking, eating or medications? Mental stimulation? Exercise? As a caregiver, is support what you need most? Some free time? Answering these questions will help you determine which type of adult day care center can best serve you: social or health-focused.

In addition to the many references and resources to help locate adult day care centers in your area, you can also try:

* Your family doctor

* Local social services or health department

* Mental health centers

* Local senior centers

* Area Agency on Aging (Call 1-800-677-1116 for the Area Agency in your area)

* Yellow pages listings under Adult Day Care, Aging Services, and similar categories.

When you phone the center(s) that you are considering, NADSA suggests asking the following questions:

* Who owns or sponsors the agency?

* How long has it been operating?

* Is it licensed or certified? (if required in your State)

* What are the days and hours of operation?

* Is transportation to and from the center provided?

* Which conditions are accepted (memory loss, wheelchairs, incontinence)?

* What are the staff credentials, and what is the ratio of the staff to participants?

* What activities are offered? Are there a variety of individual and group programs?

* Are meals and snacks included? Are special diets accommodated?

Next, If you are a meticulous person, spend a day at the center that sounds best to you, so that you can get a “feel” for the people and environment. Be sure to bring a site checklist with you (see references and resources below). You may wish to go back a few times to see whether your experience on different days confirms your initial impressions.

To find out more about the specific adult day care centers where you live, you will want to contact your local aging information and assistance provider or area agency on aging. The Eldercare Locator, a public service of the Administration on Aging (at 1-800-677-1116)or www.eldercare.gov can help connect you to these agencies.

The National Adult Day Services Association is a good source for general information about adult day care centers and programs. They can help you link to a state adult day care association. It can be reached by calling the toll-free telephone number 1-866-890-7357 or by going to their website which you can find with a simple web search.

Some area agencies on aging have programs or link to services that assist older people obtain low-cost assistive technology. You can call the Eldercare Locator at 1-800-677-1116 to locate your local triple A. In addition local civic groups, religious and veterans’ organizations, and senior centers may be able to refer you to assistive technology resources.

I hope this helps enough to get you started. This article is just a synopsis of a much longer eBook which will be included for subscribers of the CaregiverRelief newsletter. Find out more by checking out easycaregiving.com When you get there, take a look in the upper left-hand corner and sign up for the free stress management CD, and are automatically enrolled for the next newsletter and ton of other free stuff.

If this is your first time here and you want to read some of my published articles please go to How to Avoid ending up in Nursing Home and Caregiving is a Thankless task These are just longer versions of what has already been posted here.

Finally I want to shamelessly promote an amazing product called Resveratrol and refer you to the manufacturers of the most powerful compound I have found so far: Longevity RezV who graciously offer a free sample for those that find them through my link. It worth looking at the site if just to see the 60 minutes segment that they use on their home page.

thanks, Donahue

Published in:  on November 20, 2009 at 1:45 pm Comments (1)
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Partnering With Your Doctor Quiz

I’m on the speakers bureau of the Alzheimer’s Association and this weekend I am giving a talk on “Partnering with Your Doctor”  In the materials that the Alzheimer’s Association provided me for the talk was a short little quiz.  I was impressed with this short 12 question survey, and thought you would like to see it too.

In my experience, caregivers often lose focus when they take their loved one to a doctor.  Maybe you do too?  Do you feel rushed when the doctor finally comes into the examination room?  Do you sometimes leave the office and remember something important you wanted to discuss with the doctor?  Or do you start running at the mouth frittering away your time with the doctor talking about the minutiae of your loved one’s behavior or symptoms and get side tracked from the important changes that you should have covered.

Here’s the quiz, lets see how you do.  And remember afterwards to go over to either www.easycaregiving.com or www.caregiverrelief.com and sign up for the newsletter.

One more thing: I noticed that the quiz seems to be written to you and about your own doctors visits.  If you are a caregiver for a memory impaired person please mentally re-word the questions so they fit your circumstances.

(Keep track of your answers so you can determine your score afterward.)

Do you usually:

  1. Make a list of questions, symptoms and concerns before your doctor visits? (Yes or No)
  2. Bring a friend or family member with you to the doctor’s office? (Yes or No)
  3. See the doctor right away when you feel like something is wrong? (Yes or No)
  4. Ask your doctor questions about your symptoms and concerns? (Yes or No)
  5. Bring a list of your medications and medicine bottles with you to your doctor visits? (Yes or No)
  6. Ask your doctor what you need to do next about your illness? (Yes or No)
  7. Make decisions about your care together wit the doctor? (Yes or No)
  8. Ask your doctor what results and side effects you can expect from your medications and treatments? (Yes or No)
  9. Take notes during doctor visits? (Yes or No)
  10. Leave the doctor’s office with all your questions answered? (Yes or No)
  11. Ask your doctor for written information about your medical condition? (Yes or No)
  12. Ask the doctor for a diagnosis so you know exactly what the problem is? (Yes or No)

Count the number if times you circled “yes”   (score: _________)

0 – 4 = I am not a very active health care partner

5 – 8 = I am somewhat of an active partner

9 or more = I am a very active healthcare partner

So how did you do?  Is there room for improvement? Not to worry – you are on the right track, you will be fine.

Remember you have two websites that can help you with all your caregiving questions. Start with www.caregiverrelief.com and stay updated with www.easycaregiving.com and don’t forget to sign up for the FREE newsletter at either site.

Please help me keep this blog active and at least visit my sponsors website. (Not to mention that its an amazing product that I use faithfully) “>CLICK HERE for the ResV site and you can get a FREE sample by using this link!

Caregiver Stress & Burnout: Can Lead To Tragic Events

Today I want to share a grim story with you. If you watch the news it may have caught your eye. But I want to post it in its entirety here.  It may be that you are like Bobby, taking care of one or both parents with Alzheimer’s.  If you have been doing it a while then you may identify with Bobby quite a bit.  If you are a new caregivers, then let this be a cautionary tale. The point is caregiver stress is potent, and it sneaks up on you, and before you know it your whole life has changed and you are putting one foot in front of the other – day in and day out, and you have almost stopped asking yourself questions like: how did I get here?

The point is, there is a way out, there really is!  But you are going to have to open your mind to new information and take some NEW actions in your life. Please take a moment and read this article, and see how much of what Bobby was dealing with, you are dealing with too. I will have a little more information for you afterward:

Caregiver stress underlies death

The Associated Press

Published: November 9, 2009

FORT LAUDERDALE – The scenes seared into the minds of those who know Bobby Yurkanin differ only in place: Whether in the pool, dinner table or bowling alley, he was a 50-something man whose life had been handed over to the sickness of his parents. Always, his father was by his side. Yurkanin moved across the country to care for his dying mother. He did it again as his father sank into Alzheimer’s disease. When the father grew combative, his son would calm him. When he didn’t want to eat, his son would cajole him to take some fruit. Friends said the son assumed a caretaker role out of necessity, despite a strained family history. Those who saw him and his father together often described the younger Yurkanin as dutiful, patient, dedicated. All this disappears into a single scene: A beachside argument, the father’s lifeless body lying in the sand, and accusing fingers pointing to the son. Witnesses said they saw the son drag his father into the ocean, let the waves steal his breath, then tell a 911 dispatcher called by an onlooker to turn the ambulance around. Yurkanin arrived at his lowest point a relentless, thankless, solitary task of caring for someone with dementia. Millions know it. But Yurkanin’s downward spiral ended with a charge of murder.

Yurkanin’s father was a successful engineer, businessman and inventor. The family’s New Jersey home sold for nearly $1 million, and there were two more modest homes in Florida. Yurkanin told psychologists his father was an abusive alcoholic, his mother prone to psychotic episodes. He told his ex-wife his father abused his mother and his grandmother. For Bobby, an only child, growing up was traumatic, said his attorney, Michael Weinstein. Still, he finished college and graduate school. He started law school, dropped out and set up a paralegal business. He also excelled at something that would be cited when his father lay helpless on the beach. He was a lifeguard, whose skill is evident in newspaper clippings of his wins at competitions.

In the late 1990s, moved home to Short Hills, N.J., to help care for his mother, who had cancer. Not long after she died in 2001, his father showed signs of Alzheimer’s. When the father resisted going to a nursing home, his son felt he had no choice but to take over his care. Bobby Yurkanin assumed supervision and he and his father moved to Florida. The disease progressed. In time, Bobby showed signs of losing control. In Palm Coast, neighbor Kathy Mittelstadt told police she once saw the father wandering the street in a diaper. Numerous other times, she said she heard the son yelling and cursing. “I can’t wait till you’re no longer one of my problems,” she said she heard him say.

Troubles mount

At the Playa Del Sol condominiums in Fort Lauderdale, where father and son settled, complaints grew. The father was often wandered in hallways, sometimes nude, and into others’ condos. Residents complained he dressed in front of an open door. Once, when Yurkanin was alerted his dad had been wandering, condo employees said he went into a profane tirade in the lobby. Anna Fico, a friend who sometimes helped watch the father, said Bobby Yurkanin confided that it was all too much. It’s a dilemma many others have confronted. Sometimes the stress has led to physical abuse. People caring for a spouse or parent with dementia have been accused of killing them in rage or expression of mercy to end their misery. Caregivers have gone to prison. “The demands on caregivers are almost unfathomable,” said Gail Gazelle, an assistant professor at Harvard Medical School who is an advocate for Alzheimer’s patients and their families. “The anger, guilt, and shame that caregivers experience is intense.”

No one accused Yurkanin of abuse, Weinstein said. Many who saw him with his father said the son would grow frustrated by his father and sometimes raise his voice, but his care was undeniably loving. Kenneth Carter, an old friend of Yurkanin, said he saw him with his father during several visits. He described both men as alcoholics, but said he was impressed with the way his friend cared for his father. Carter said the old man would suddenly stand and recite the Gettysburg Address or sing “The Star-Spangled Banner.” He would take off his shorts and run down the street. His mood could change at a moment; he would kick, scream, and become combative “Bobby would always come to Bob’s rescue, and all would be forgiven,” Carter said. One Friday, Yurkanin had to give his father a shower and a shave, Fico, called and asked them to join her at the beach. Yurkanin agrees.

Fight over swimsuit

Not long after they arrive, the father pulls down his swimsuit and stands on the sand exposed. “Bob! Bob! Bob! Your father took off his clothes!” Fico yelled. What happened varies according to witness accounts. Yurkanin swears at his father, said a couple nearby. With the father resisting, the son took him into the water. Onlookers and Fico used the word “drag.” It’s the only way his father will learn, the only way he’ll listen, a witness quoted Yurkanin as saying with profanity. In waist-deep waters, Yurkanin removes his father’s shorts and diaper as Fico helps hold him up. The son goes ashore to throw out the diaper, returns, and dives underneath to try to put the shorts back on. It doesn’t work. Some say the father continues to fight his son. Some witnesses said Yurkanin pulled his father’s ankles upward to put the shorts on and the old man’s head went underwater. But attorney Weinstein said it’s not clear the father’s head was submerged. Whatever happened, it was clear to many watching the father was distressed. Joanne Turing, peering through binoculars from her balcony, saw the man’s face change color. “This guy’s dying,” she said.

After Yurkanin brought his father ashore, some witnesses were puzzled by his actions. He put him so close to the water, waves washed over his face, some said. Others didn’t know why it took so long for him to begin cardiopulmonary resuscitation. Some said he never did. Three witnesses called 911. In one call, an agitated Yurkanin is heard yelling that an ambulance isn’t needed. “Oh sir, you’re kidding,” the called said. “I’m his son!” he shouted. “Get out of here! Don’t send any ambulance. I don’t want any ambulance.” The caller pleads with the operator: “Help! Help! Help! Help! Help!” Yurkanin took the phone and told the dispatcher: “Forget it! Don’t you come! If you come, I’m not releasing this patient.” A man grabs the phone, asking the dispatcher to send help.Paramedics arrive. As they prepare to take the father to Holy Cross Hospital, where he arrived in critical condition, the son asked to ride along. He is told to wait for police, who asked Yurkanin why he forced his father in the water. “He smelled bad,” he replied.

The father died the next day. The death is ruled a homicide and Yurkanin, 53, is arrested two weeks later on a first-degree murder charge. He is free on bond while awaiting trial in January. If convicted, he could be sentenced to life in prison. Weinstein said Yurkanin’s response was a culmination of “deep-rooted psychological issues,” not malice. Psychologists hired by Weinstein said Yurkanin felt helpless, hopeless. They said caring for two chronically ill parents for many years resulted in post-traumatic stress disorder.

******************
Terrible.  Whether you believe what Bobby did is inexcusable, or you believe he is a victim of stress and driven insane by an uncontrollable demented father, as caregivers we can identify with him at least a little bit.  However, if you can identify with Bobby a lot, and you are a lone caregiver taking care of difficult parent or spouse, you need to take action.  I am sure you have heard  that stress is killer: that long-term stress significantly increases your chance for a heart attack, stroke, even cancer. And you may have even seen the statistics that half of all caregivers die before the person they caring for.  I can’t prove it, but I think the only imaginable reason for this scary statistic is stress. Stress kills!
But you can reduce and even eliminate your stress, and you can do it without changing your circumstances or putting your loved one in a nursing home.  This post is already too long for me to be specific, but I have been writing about stress management for years.  I have developed a number of techniques that work great for caregivers who cannot get away or out of the house.
In fact, I will be posting many on them in my newsletter. But for now, let me recommend Guided Imagery.  In fact, if you sign up for my newsletter (and get on the list for a free stress management CD), you will get a free download today!  Just look for the sign up for in the upper-left part of this page, put in your name and email and I will send you a free, no obligations required, guided imagery recording that was written and produced by a Gerontologist, just for caregivers like yourself.
Donahue Vanderhider, MSG
Gerontologist, Hypnotherapist
p.s.  I was deeply moved by this story, if you feel you are against the ropes and can picture yourself in Bobby’s shoes, hurting the one you love, please contact me immediately. Do not worry about your identity, it is safe with me.  But let me help or at least steer you to someone or some agency that can.  Contact me here just leave a response in the comments section, or write me at donahueg@alumni.usc.edu

National Family Caregiver Month

From the desk of President Obama:

NATIONAL FAMILY CAREGIVERS MONTH, 2009
- – - – - – -
BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
A PROCLAMATION

The true strength of the American family finds its roots in an unwavering commitment to care for one another. In difficult times, Americans come together to ensure our loved ones are comfortable and safe. Whether caring for a parent, relative, or child, our Nation’s caregivers selflessly devote their time and energy to the well-being of those they look after. During National Family Caregivers Month, we honor the individuals providing essential services to family members who could not otherwise look after themselves.

Caregiver support is at the heart of my Administration’s commitment to assisting our Nation’s families. Currently, a variety of programs and services offer help and encouragement to family caregivers. The National Family Caregiver Support Program and the Lifespan Respite Care Act include important resources for caregivers of children and adults, with opportunities to receive much-needed assistance and take part in support programs with other families. These programs allow individuals to remain with their families for as long as possible while helping to ensure the wellness of participating care providers.

My Administration’s dedication to caregivers is also embodied in our efforts to develop policies to support workers trying to manage their responsibilities on the job and at home. Families are best able to care for their loved ones when they can take time away from work without fear of losing their job or their income. We all have roles to play, including employers, by providing paid leave, flexible work arrangements, and other programs when feasible, to help ensure that caregivers are able to successfully meet their work and household responsibilities.

Every day, family caregivers assist loved ones with tasks ranging from personal care and homemaking, to transportation and financial assistance. As the foundation of America’s long-term care system, these individuals give millions of Americans the peace of mind and security that only family can provide.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim November 2009 as National Family Caregivers Month. I encourage all Americans to pay tribute and support those who are caring for their family members, friends, and neighbors in need of assistance.

IN WITNESS WHEREOF, I have hereunto set my hand this thirtieth day of October, in the year of our Lord two thousand nine, and of the Independence of the United States of America the two hundred and thirty-fourth.

BARACK OBAMA

If you are a family caregiver, I want to offer you a free stress management recording: just go here EasyCaregiving and look in the upper left-hand corner for a sign up form.

Adult Day Care: Take A Break Today!

If you are caregiver you may be struggling with exhaustion, frustration, and depression. You may be feeling that you have little support from friends and family and feeling that people do not understand the difficulty of what you do.  Let’s face it; most people wouldn’t unless they walked in your shoes for a week. If you are a typical caregiver you are alone and it’s not easy. Given that, you need every break you can get.  Fortunately, Adult Day Care can be one of the best weapons in your arsenal. There are very few opportunities for you to get a break, so you should never pass up a chance to take one.

There are two general types of adult day care programs. One is based on a medical model and the other on a social model. The medical model provides comprehensive medical, therapeutic, and rehabilitation day treatment. The social model offers supervised activities, peer support, companionship, and recreation. Both models assist older adults and those with chronic conditions to remain as independent as possible, for as long as possible.

Adult day care is a planned program of activities designed to promote well-being though social and health related services. Almost exclusively adult day cares are only open during the week, typically between 8am and 3 or 4pm. They provide snacks in addition to a midday meal.

Adult day care offers a win/win situation for everyone in the family—not only for the member who attends the program, but also for the family member who has primary responsibility as caregiver. Adult day care provides a much-needed respite for the caregiver, affording a break from the physical demands and stress of providing “round-the-clock care.”

For the participant, adult day care’s benefits can be extensive:

  • a safe, secure environment in which to spend the day
  • enjoyable and educational activities
  • improvement in mental and physical health
  • enhanced or maintained level of independence
  • socialization and peer support
  • nutritious meals and snacks

For the caregiver, adult day care’s benefits are equally important:

  • time for routine chores like shopping and banking
  • make time for one’s owns medical and dental needs
  • time for personal rest and recreations: exercise or naps
  • opportunity for household tasks and cleaning

A well-run adult day care center’s goals will focus on enriching the participants’ lives, building upon their skills, knowledge, and unique abilities and strengths. Below are some of the activities that may be available:

  • Arts and crafts
  • Musical entertainment and sing-a-longs
  • Mental stimulation games such as BINGO
  • Stretching or other gentle exercise
  • Discussion groups (books, films, current events)
  • Holiday and birthday celebrations
  • Local outings.

Besides recreational activities, some adult day care centers provide transportation to and from the center, social services including counseling and support groups for caregivers, and health support services such as blood pressure monitoring and vision screening.

Finding the right one for you

The National Adult Day Services Association (NADSA) recommends you start by asking yourself what specific services both elder adult and caregiver most need. For the day care participant, are social activities primary? Assistance with walking, eating or medications? Mental stimulation? Exercise? As a caregiver, is support what you need most? Some free time? Answering these questions will help you determine which type of adult day care center can best serve you: social or health-focused.

In addition to the many references and resources to help locate adult day care centers in your area, you can also try:

  • Your family doctor
  • Local social services or health department
  • Mental health centers
  • Local senior center
  • Area Agency on Aging (Call 1-800-677-1116 for the AAA in your area)
  • Yellow Pages listings under Adult Day Care, Aging Services, Senior Citizens’ Services, and similar categories.

When you phone the center(s) you’ve chosen to consider, NADSA suggests asking the following questions:

  • Who owns or sponsors the agency?
  • How long has it been operating?
  • Is it licensed or certified? (If required in your state)
  • What are the days and hours of operation?
  • Is transportation to and from the center provided?
  • Which conditions are accepted (e.g., memory loss, limited mobility, incontinence)?
  • What are the staff’s credentials, and what is the ratio of staff to participants?
  • What activities are offered? Are there a variety of individual and group programs?
  • Are meals and snacks included? Are special diets accommodated?

Next, spend a day at the center that sounds best to you, so that you can get a “feel” for the people and environment. Be sure to bring a site checklist with you (see references and resources below). You may wish to go back a few times to see whether your experience on different days confirms your initial impressions.

To find out more about the specific adult day care centers where you live, you will want to contact your local aging information and assistance provider or area agency on aging (AAA). The Eldercare Locator, a public service of the Administration on Aging (at 1-800-677-1116 or www.eldercare.gov) can help connect you to these agencies.

The National Adult Day Services Association is a good source for general information about adult day care centers and programs. They can help you link to a state adult day care association. It can be reached by calling the toll-free telephone number 1-866-890-7357 or by going to http://www.nadsa.org.

  • Some area agencies on aging (AAA) have programs or link to services that assist older people obtain low-cost assistive technology. You can call the Eldercare Locator at 1-800-677-1116 or visit the website www.eldercare.gov to locate your local AAA. In addition local civic groups, religious and veterans’ organizations, and senior centers may be able to refer you to assistive technology resources.

This is just a synopsis of a much longer ebook which will be included in my newsletters. You can find out more by checking out http://easycaregiving.com

Take a look in the upper left-hand corner and sign up for the free stress management CD, and are automatically enrolled for the next newsletter and ton of other free stuff.

 

Back To Basics: for new caregivers

Frequently Asked Questions:

From Womenshealth.gov

Q: What is a caregiver?

A: A caregiver is anyone who provides help to another person in need. Usually, the person receiving care has a condition such as dementia, cancer, or brain injury and needs help with basic daily tasks. Caregivers help with many things such as:

grocery shopping
house cleaning
shopping
paying bills
giving medicine
bathing
using the toilet
dressing
eating

People who are not paid to provide care are known as informal caregivers or family caregivers. The most common type of informal caregiving relationship is an adult child caring for an elderly parent. Other types of caregiving relationships include:

adults caring for other relatives, such as grandparents, siblings, aunts, and uncles
spouses caring for elderly husbands or wives
middle-aged parents caring for severely disabled adult children
adults caring for friends and neighbors
children caring for a disabled parent or elderly grandparent

Q: Who are our nation’s caregivers?

A: Most Americans will be informal caregivers at some point during their lives. During any given year, there are more than 44 million Americans (21% of the adult population) who provide unpaid care to an elderly or disabled person 18 years or older. Altogether, informal caregivers provide 80 percent of the long-term care in the United States.

Sixty-one percent of caregivers are women.
Most caregivers are middle-aged.
Thirteen percent of caregivers are aged 65 years and older.
Fifty-nine percent of informal caregivers have jobs in addition to caring for another person. Because of time spent caregiving, more than half of employed women caregivers have made changes at work, such as going in late, leaving early, or working fewer hours.

Q: What is caregiver stress?

A: Caregiver stress is the emotional and physical strain of caregiving. It can take many forms. For instance, you may feel:
frustrated and angry taking care of someone with dementia who often wanders away or becomes easily upset
guilty because you think that you should be able to provide better care, despite all the other things that you have to do
lonely because all the time you spend caregiving has hurt your social life
exhausted when you go to bed at night

Caregiver stress appears to affect women more than men. About 75 percent of caregivers who report feeling very strained emotionally, physically, or financially are women.
Although caregiving can be challenging, it is important to note that it can also have its rewards. It can give you a feeling of giving back to a loved one. It can also make you feel needed and can lead to a stronger relationship with the person receiving care. About half of caregivers report that:
they appreciate life more as a result of their caregiving experience
caregiving has made them feel good about themselves

Q: Can caregiver stress affect my health?

A: Although most caregivers are in good health, it is not uncommon for caregivers to have serious health problems. Research shows that caregivers:

are more likely to be have symptoms of depression or anxiety
are more likely to have a long-term medical problem, such as heart disease, cancer, diabetes, or arthritis
have higher levels of stress hormones
spend more days sick with an infectious disease
have a weaker immune response to the influenza, or flu, vaccine
have slower wound healing
have higher levels of obesity
may be at higher risk for mental decline, including problems with memory and paying attention

One research study found that elderly people who felt stressed while taking care of their disabled spouses were 63 percent more likely to die within 4 years than caregivers who were not feeling stressed.
Part of the reason that caregivers often have health problems is that they are less likely to take good care of themselves. For instance, women caregivers, compared with women who are not caregivers, are less likely to:

get needed medical care
fill a prescription because of the cost
get a mammogram

Also, caregivers report that, compared with the time before they became caregivers, they are less likely to:

get enough sleep
cook healthy meals
get enough physical activity

Q: How can I tell if caregiving is putting too much stress on me?

A: Caregiving may be putting too much stress on you if you have any of the following symptoms:

feeling overwhelmed
sleeping too much or too little
gaining or losing a lot of weight
feeling tired most of the time
loss of interest in activities you used to enjoy
becoming easily irritated or angered
feeling constantly worried
often feeling sad
frequent headaches, bodily pain, or other physical problems
abuse of alcohol or drugs, including prescription drugs
Talk to a counselor, psychologist, or other mental health professional right away if your stress leads you to physically or emotionally harm the person you are caring for.

Q: What can I do to prevent or relieve stress?

A: To begin with, never dismiss your feelings as “just stress.” Caregiver stress can lead to serious health problems and you should take steps to reduce it as much as you can.
Research shows that people who take an active, problem-solving approach to caregiving issues are less likely to feel stressed than those who react by worrying or feeling helpless. For instance, someone with dementia may ask the same question over and over again, such as, “Where is Mary?” A positive way of dealing with this would be to say, “Mary is not here right now,” and then distract the person. You could say, “Let’s start getting lunch ready,” or involve the person in simple tasks, such as folding laundry.
Some hospitals offer classes that can teach you how to care for someone with the disease that your loved one is facing. To find these classes, ask your doctor, contact an organization that focuses on this disease, or call your local Area Agency on Aging (see below). Other good sources of caregiving information include:

doctors and nurses
library books
web sites of disease-specific organizations

Here are some more tips for reducing stress:

Find out about caregiving resources in your community (see below).
Ask for and accept help. Be prepared with a mental list of ways that others can help you, and let the helper choose what she would like to do. For instance, one person might be happy to take the person you care for on a walk a couple times a week. Someone else might be glad to pick up some groceries for you.
If you need financial help taking care of a relative, don’t be afraid to ask family members to contribute their fair share.
Say “no” to requests that are draining, such as hosting holiday meals.
Don’t feel guilty that you are not a “perfect” caregiver. Just as there is no “perfect parent,” there is no such thing as a “perfect caregiver.” You’re doing the best you can.
Identify what you can and cannot change. You may not be able to change someone else’s behavior, but you can change the way that you react to it.
Set realistic goals. Break large tasks into smaller steps that you can do one at a time.
Prioritize, make lists, and establish a daily routine.
Stay in touch with family and friends.
Join a support group for caregivers in your situation, such as caring for someone with dementia. Besides being a great way to make new friends, you can also pick up some caregiving tips from others who are facing the same problems you are.
Make time each week to do some¬thing that you want to do, such as go to a movie.
Try to find time to be physically active on most days of the week, eat a healthy diet, and get enough sleep.
See your doctor for a checkup. Tell her that you are a caregiver and tell her about any symptoms of depression or sickness you may be having.
Try to keep your sense of humor.
If you work outside the home and are feeling overwhelmed, consider taking a break from your job. Employees covered under the federal Family and Medical Leave Act may be able to take up to 12 weeks of unpaid leave per year to care for relatives. Ask your human resources office about options for unpaid leave…

The actual article is much longer and you find it at womenshealth.gov, along with a lot more great caregiver information. A little later I will be talking a lot about Guided Imagery as a very effective, inexpensive, and quick way to reduce your stress substantially. If you need a sneak peak go to www.caregiverrelief.com, or see the blog at www.easycaregiving.com or www.discoverlongevitynow.com

Published in:  on November 2, 2009 at 11:45 am Leave a Comment
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Alzheimer’s care is often a Thankless Task

Caring for someone with Alzheimer’s is quite literally a thankless task. Which is not to say that it’s unappreciated, but aside from the first few months of an early diagnosis, Alzheimer’s sufferers are generally oblivious of their own condition and naturally cannot comprehend the sacrifices made by their loved ones to provide care and keep them healthy?

But please don’t read the above as being a condemnation of the unfortunate souls that have no control over what has happened to them. Clearly, the tragedy of Alzheimer’s is that sufferers very early on “forget” they are ill. Rather read it as a recognition and acknowledgment of the selflessness and integrity of their caregivers. I say this because I think something happens in the heart of most caregivers that gives them the resolve to commit, in all likelihood, the next decade of their life to the care and protection of the person they love the most in the world. And sadly at the same time that a caregiver is making this internal resolution, they are also coming to terms with the finality of the diagnosis “Alzheimer’s” and grieving everything that means for their relationship.

Too often, the tragedy and heartbreak of the caregiver is pushed to the background, as the Alzheimer’s sufferer becomes the identified patient and the focus of everyone’s attention. Tragically, in addition to the personal commitment a caregiver makes to the care and well-being of their loved one, they often are subconsciously abandoning many of their own personal goals and desires. Caregivers, while taking on all these new tasks and challenges that they never expected, are subconsciously strapping themselves in for the long haul.

Stubbornness is Born

Rising to the occasion; facing financial, legal and other new responsibilities requires a certain amount of tenacity and determination. For this reason I find that caregivers seem to be uniquely strong-willed. Maybe it takes a stubborn streak to be able to focus on the day-to-day grind of meeting the needs of another adult that has lost the ability to reason and make their own ’safe’ decisions. But while stubbornness can be a positive personality trait when it keeps a caregiver going month after month, year after year; it can also be a negative trait when it suppresses an open mind to new and alternate solutions. Stubbornness can lead to inflexibility and can prevent us from accepting and opening up to new concepts and ideas. It narrows our field of vision. Like blinders on a horse our focus is reduced to what is in front of us at the moment.

As a Gerontologist I have seen it over and over again, maybe you have too. Too often I meet a caregiver that is wound up and ready to explode. It is obvious to everyone around them that they are extremely stressed out. Unfortunately they often have trouble admitting it, even to themselves. They will tell you that everything is under control. “I’m fine”, they say. And, tragically, to the extent that they are “fine”, they are heading for a very big crash. Besides the toxic effects of stress on one’s health. They are closed off to the concept of surrender and the acknowledgement that they need help. But that is exactly what every caregiver needs…help. And I will tell you why:

Stress

Caregivers need to acknowledge and overcome long-term stress. It is a good bet that long-term stress is responsible for the statistics that more than 50% of caregivers die before the person they are caring for. That’s right, half of all caregivers “check out” before the “identified patient”. Why do you think that is?

Dr. Jamie Huysman, the co-founder of Leeza’s Place, gives a great talk. In his speeches you can often hear him suggest that caregivers need to “take the oxygen first”, referring to the preflight instructions that we hear every time we fly. This is an excellent illustration of the average caregiver’s dilemma. Flight attendants, when giving preflight instructions, tell people traveling with children, that if cabin pressure is lost and the oxygen masks are deployed, they should put their own oxygen mask on before helping their children with their mask. The reason is that there are only a few seconds before you lose consciousness, and in order to be effective and save others, the parent (caregiver) needs to see to their own needs first. (or they won’t be around to see to anybody else’s needs later).

So I plead with my caregiver clients. concede that you need help, start taking more care of yourself and be willing to hand the job over to others whenever you can,. Remember that alarming statistic from above that over 50% of caregivers die before the person they are caring for. Well add another 5 – 15% that become incapacitated and no longer able to continue caregiving for their parent or spouse. The causes are many, it might be a stroke, or a serious cancer, or a fractured pelvis. Unfortunately, I have seen too many a cases of older adults with profound Alzheimer’s whose caregiver is out of the picture. I know this from managing assisted living communities for almost twenty years.

Over the years I have spoken, one-on-one, with hundreds of caregivers. My overwhelming impression is the unwavering love and commitment they have to their loved one. They genuinely believe that no one can care for their parent or spouse as well as they can. They believe that no one can possibly know their loved one as well as them. To a great extent I agree, and this is why I continue to recommend that they take action to preserve their health. Because if something happens to them, who will care for their loved one? So to manage their stress I encourage caregivers to use adult day care, to find respite care options, and to attend support groups. For example; adult day care gives them a day off from their 24/7 caregiving, respite care allows them to run errands and see to their own health care appointments, and in support groups they can share their experience with newer caregivers, while learning from more experienced caregivers. Most of all, caregivers need a way to shut down the stress response in the body. A topic for another article, I will tell you briefly that stress is a physiological response that causes the brain to release hormones and neurotransmitters into the body, that in turn alters our physiology for survival. Which is great in the short-term, but if left on too long, like in long-term or chronic stress, it causes damage to organs and the immune system. Resulting not only in burn-out, but in illness and scary statistics that say caregivers are a coin-flip away from…well… you know.

Board and Care

I also recommend board and care and assisted living. Usually, this is the option that caregivers are very specific about NOT doing. And there you have it, before I can finish my sentence: they are railing how they will never allow it. These stubborn caregivers have made up their mind, sometimes years earlier, and unfortunately they are not about to listen to anything that challenges their predetermined notions.

But there are some very good reasons for being open-minded about assisted living. For example there comes a time, especially with Alzheimer’s Disease, that the care needs of the sufferer are greater than the caregiver’s ability to provide them. Given this circumstance, it would be a terrible disservice to the loved one, to keep them at home with inadequate care. Tragically, what generally happens is caregivers put this off too long. Unfortunately, when you wait too long, the only placement option is going to be a nursing home. Your loved one’s care needs at this stage become medical not custodial, and therefore surpass the services offered by assisted living or board and care. You effectively have over-shot the window for board and care and are left with only the nursing home option.

The best way to decide on this sensitive topic is to go visit 2 Assisted Living Communities and 2 small Board & Care homes. This will give you a good cross-section of what they are like. It’s never too early to go look. Get the information and brochures and put them away for future reference.

Donahue Vanderhider, a Gerontologist practicing in Southern California, has a deep understanding and extensive knowledge of Aging and all its related disorders: both normal and abnormal. He has a Masters Degree from USC and postgraduate training in Clinical Guided Imagery, Metaphysics, and Neuro-linguistic Programming. He is also on an advisory board to the Alzheimer’s Association. His passion and life-long goal is to improve the quality of life of caregivers, especially those dealing with Alzheimer’s. Currently his active blogs are http://easycaregiving.com and recently opened to the public: http://discoverlongevitynow.com for his private clients that pay for his services.

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